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True Dignity is a grassroots, independent, citizen-led initiative in opposition to assisted suicide. Originally started in 2010 as True Dignity Vermont, our fight has extended beyond Vermont as assisted suicide advocates are pushing their agenda across the U.S. and other nations. Vulnerable people deserve true dignity and compassion at the end of life, not the abandonment of assisted suicide. Killing is not compassion and True Dignity will work to ensure our end-of-life choices respect the dignity of all.

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Eighteen months ago True Dignity ran the following story about an elderly Medicaid patient who felt pressured to request assisted suicide by caregivers in the facility where she was admitted for recovery from a fall.  The patient did not have a terminal diagnosis.  Beth Neill, the patient’s daughter, who reported the abuse to True Dignity, has since passed away.  We are running the story again, on request, in order to call attention to the dark side of Act 39, a side that is very real but unfortunately not reflected in the lopsided reporting in the mainstream media of assisted suicide deaths that are made to look almost glamorous and appealing.

From July 2013:

Here in Vermont, where physician-assisted suicide has been legal for just two years, cases of pressure are already starting to emerge, and it isn’t always family members providing the pressure. True Dignity has spoken with the family of a 90-year-old Medicaid patient who felt pressured by caregivers in the facility where she was admitted for recovery from a fall. The patient did not have a terminal diagnosis.

According to Beth Neill, clinicians at the Berlin Health and Rehab Center informed her mother at regular intervals during her 4-month stay there that she had a “right” to use Act 39, and that, “She didn’t even have to discuss it with her family.” It was the act of repeatedly bringing up Act 39 as a health care “option” that caused her mother to feel pressure, and not overt efforts by clinicians to convince her to request the lethal prescription, Neill said. However, she said her mother made it clear she wanted nothing to do with Act 39 and was disturbed that staff re-introduced the topic repeatedly.

Neill notes that her mother was, and is, in otherwise surprisingly good health for her age, and would not have qualified for Act 39, as the extended stay in Berlin Health and Rehab was strictly for help recovering from her fall.

Neill was not made aware of the situation at Berlin Health and Rehab until after her mother had already been moved to assisted living at a Northfield facility, where she currently resides. When she did hear of it, “It blew my eyebrows off,” she said.

According to Neill, the staff at the Northfield facility informed her that her mother had reacted strongly when they began to discuss care options. “Mom thought they were going to start talking about Act 39, the way they did at Berlin (Health and Rehab), and she blew up at them. She said, ‘I don’t want anyone talking to me about killing myself.’”

That’s when it came out that the staff at Berlin Health and Rehab had talked to her more than once about her “right” to request a lethal prescription. “I recalled then that my mother had been very eager to get out of there, and I had noticed that she seemed frustrated and unhappy, but I didn’t know why,” Neill explained.

Her mother told her that the staff at the Berlin facility specifically stated that Act 39 “is the law,” and in her words, “They said she could ‘off’ herself any time she wanted to.” She told her physician, who adamantly opposes Act 39, “They want me to take a bunch of pills and kill myself.”

Clearly, confusion abounds regarding the duties of medical caregivers with respect to Act 39. Vermont’s “affirmative duty to inform” under the Patient Rights Act requires that health care providers let patients know of all available treatment options, but it is not clear how this is understood to apply to Act 39 . Beth Neill’s mother did not have a terminal diagnosis and would not have been eligible for a lethal prescription under Vermont’s law.  Asked why she was informed of this “treatment option” by health care workers at his facility, John O’Donnell, Executive Director of Berlin Health and Rehab, declined to reply.

True Dignity also was unable to get answers from Berlin Health and Rehab to explain where staff received training around the implementation of Act 39and what the facility’s official policy is on assisted suicide.

We can only speculate about where some information may be coming from. In a letter to members, the well-funded pro-assisted-suicide group Patient Choices Vermont, an arm of the national organization Compassion and Choices, says that the group Compassion and Choices Vermont has been doing “extensive work educating patients, medical providers and institutions, as well as assisting individuals” to find the “resources they need.” The letter also states, “While details are still being determined, PCV will have an important role to play as health department regulations are developed (and) insurance coverage issues are dealt with.”

We do not know whether or not this group had a hand in helping “educate” staff at the nursing home where Beth Neill’s mother felt pressured to use Act 39. At present, there is no oversight mandated by Act 39 to prevent abuse, and the only other organization we are aware of with resources and staff to educate health care providers about Act 39 is the Vermont Ethics Network, which also receives funding from Compassion and Choices.

States are prohibited from using Medicaid dollars to cover costs associated with physician assisted suicide, but it is unclear whether there are provisions in the State-sponsored Green Mountain Care Medicaid to pay for drugs and doctor visits for patients requesting Act 39.

Because Act 39 contains few safeguards and almost no reporting requirements, it seems that questions will be more abundant than answers for the foreseeable future.

Thanks to a strong family support system and a personal physician who is opposed to assisted suicide, Beth Neill’s mother was able to resist pressure to consider using Act 39. What is unknown is how many other vulnerable individuals are feeling pressure today from family or caregivers, and may eventually succumb, as physician assisted suicide becomes entrenched in Vermont and aggressively promoted by those who may operate from motives at odds with the best interests of the patient.

Peter Shumlin, the outgoing governor of Vermont, fought hard to legalize assisted suicide in the state; so it was no surprise when he listed it among other “accomplishments” in his farewell speech this week.  A big surprise, however, came when the governor revealed that his own father died from assisted suicide.  See  https://www.youtube.com/watch?v=uRBvYw3n_GA, beginning at minute 54:50.

Bristling with pride, Shumlin said that never in his wildest dreams did he imagine that his own father would die in this way.  In May of 2011, however, True Dignity commented on a speech he made at a VT showing of the film “How to Die in Oregon”.  The speech can be viewed at https://www.youtube.com/watch?v=-X7tDAr7QiI,  beginning at Minute 1:40.  Speaking about how much he hoped VT would enact legal assisted suicide, he actually used his parents as illustrations of why he felt legalization was important.

Here, in italics, are our comments at the time:

We were offended by the governor’s filmed jokes about how his apparently healthy but aged parents haven’t responded as he would have liked to his attempts to have “the conversation” to plan for their dying (in the video the audience laughs when he says he asked where they planned to be in ten years).

… We need….to fight against the seduction of his not so soothing words about how Vermonters “take care of each other”, when he speaks words like these in the context of a conversation about assisted suicide.

In 2017 we are even more offended than we were in 2011.  It is hard to believe that any governor would brag about facilitating a single suicide in his state.  It is even harder to hear that governor brag about facilitating the suicide of his own parent.

Back in 2011, we were sorry for and feared for Peter Shumlin’s parents.  It is self-evident to us that any suggestion that suicide is a viable end of life option for another person is itself pressure and can never be anything else If we heard the words Shumlin spoke in 2011 from one of our adult children, we would feel pressured, and we would not forget. No act done under pressure, even the most well-meaning pressure, is ever completely free.

We hope one day to live again in a state in which the sick and elderly are legally protected from such pressure, however well-meaning or inadvertent.  Our new governor, Phil Scott, voted against legal assisted suicide when it was passed in 2013.  Let’s ask him to work for its repeal now.  Contact information will follow in the coming weeks.

The DC City Council is holding a second and final vote tomorrow on the assisted suicide bill that recently passed in its first vote.  Those opposing this dangerous law, which will surely result in premature deaths without consent and which will influence legislators in other states, are asking people from all over the country to contact the council members asking them to vote NO.  Emphasize the fact that this proposed law will not protect anyone from coercion. There are absolutely no protections for the patient once he or she gets a doctor to prescribe the lethal dose of barbiturates. The law requires no witnesses to the ingestion of the drugs, so sick people will be at the mercy of people who will benefit from their deaths.  The law puts everyone, rich or poor, at risk.

Here is the contact information:

Phone Numbers:

Anita Bonds – Tel: (202) 724-8064 | Fax: (202) 724-8099
David Grosso – Tel: (202) 724-8105 | Fax: (202) 724-8071
Elissa Silverman – Tel: (202)-724-7772 | Fax: (202)-724-8087
Robert C. White Jr. – Tel: (202) 724-8174 | Fax: (202) 727-8210
Brianne Nadea – Tel: (202) 724-8181 | Fax: (202) 724-8109
Jack Evans – Tel: (202) 724-8058 | Fax: (202) 724-8023
Brandon T. Todd – Tel: (202) 724-8052 | Fax: (202) 741-0908
Kenyan McDuffie – Tel: (202) 724-8028 | Fax: (202) 724-8076
Charles Allen – Tel: (202)-724-8072 | Fax: N/A
Yvette Alexander – Tel: (202) 724-8068 | Fax: (202) 741-0911
LaRuby May – Tel: (202)724-8045 | Fax: (202)724-8055

Email addresses:

yalexander@dccouncil.us, callen@dccouncil.us, abonds@dccouncil.us, jevans@dccouncil.us, dgrosso@dccouncil.us, Lmay@DCCOUNCIL.US, kmcduffie@dccouncil.us, pmendelson@dccouncil.us, bnadeau@dccouncil.us, esilverman@dccouncil.us, btodd@dccouncil.us, rwhite@dccouncil.us, eom@dc.gov,

From a media release issued yesterday by the Alliance Defending Freedom:

Alliance Defending Freedom attorneys filed suit in federal court in Burlington Tuesday against officials in the Vermont Board of Medical Practice and the Office of Professional Regulation on behalf of health care professionals who wish to abide by their oath to “do no harm.” The state agencies are construing Vermont’s assisted suicide law as requiring them, regardless of their conscience or oath, to counsel patients on doctor-prescribed death as an option.

According to the agency, only physicians must refer patients to others who will counsel for assisted suicide; however, all of the health care professionals filing suit contend it is unethical for them to counsel for, refer for, or in any other way participate in suicide at the hands of medical personnel.

“The government shouldn’t be telling health care professionals that they must violate their medical ethics in order to practice medicine,” said ADF Senior Counsel Steven H. Aden. “These doctors and other health care workers deeply believe that suffering patients need understanding and sound medical treatment, not encouragement to kill themselves. The state has no authority to order them to act contrary to that sincere and time-honored conviction.”

Although Act 39, Vermont’s assisted suicide bill, passed with limited protections for healthcare providers, state medical licensing authorities have construed a separate, existing mandate to counsel and refer for “all options” for palliative care to include the option of assisted suicide. The Vermont Department of Health adopted this expansive reading.

The department’s FAQ page on Act 39 says the following: “Do doctors have to tell patients about this option? Under Act 39 and the Patient’s Bill of Rights, a patient has the right to be informed of all options for care and treatment in order to make a fully-informed choice. If a doctor is unwilling to inform a patient, he or she must make a referral or otherwise arrange for the patient to receive all relevant information.”

Echoing this position, Cindy Bruzzese, executive director of the Vermont Ethics Network, which the state has given authority to speak about the standard of care in Vermont, stated in a 2013 presentation on Act 39 that physicians have a duty to inform patients of the availability of assisted suicide.

“This is nothing but the redefinition of ‘palliative care’ to mean providing assisted suicide, an intolerable position for Plaintiffs and other conscientious physicians and healthcare professionals,” the complaint filed in Vermont Alliance for Ethical Healthcare v. Hoser states. “Plaintiffs, state and national associations of conscientious healthcare professionals whose personal and professional ethics oppose the practice of assisted suicide, bring this action on behalf of their members against the operation of Act 39 to force them to counsel and/or refer for the practice.”

Today, with very little notice, no public testimony, no public expert testimony, and almost no discussion in committee, the New York Assembly’s Health Committee voted 14-11 to report out an assisted suicide bill, A.10059, euphemistically entitled “Medical Aid in Dying Act”.

The bill was sent on the the Assembly’s Codes Committee. Please email every member of that committee. It doesn’t matter where you live. If this bill passes, it will be viewed by the proponents of assisted suicide as another domino’s falling, a big domino like California. Your voice can make the difference.

Here is the contact information for the Codes Committee members:

Thomas Abinanti: abinantit@assembly.state.ny.us
James Brennan: BrennanJ@assembly.state.ny.us
Vivian Cook: CookV@assembly.state.ny.us
Stephen Cymbrowitz: CymbroS@assembly.state.ny.us
Joseph Giglio: GiglioJ@assembly.state.ny.us
Al Graf: grafa@assembly.state.ny.us
Charles Lavine:LavineC@assembly.state.ny.us
Tom McEvitt:MckeviT@assembly.state.ny.us
Michael Montesano :MontesanoM@assembly.state.ny.us
WalterMosley:MosleyW@assembly.state.ny.us
Daniel O’Donnell:OdonnellD@assembly.state.ny.us
N. Nick Perry:PerryN@assembly.state.ny.us
J. Gary Pretlow:PretloJ@assembly.state.ny.us
Edward Ra:rae@assembly.state.ny.us
Robin Schimminger:SchimmR@assembly.state.ny.us
Claudia Tenney:enneyc@assembly.state.ny.us
Michele Titus:TitusM@assembly.state.ny.us
Helene Weinstein:WeinstH@assembly.state.ny.us
David Weprind:weprind@assembly.state.ny.us
Keith L. T. Wright:WrightK@assembly.state.ny.us
Kenneth Zebrowski:ZebrowskiK@assembly.state.ny.us

Rep. Al Baldasaro of the New Hampshire Legislature on May 11 gave an impassioned speech against a proposed “study committee” to look at “end of life choices.”  Speaking on behalf of Veterans’ PTSD/TBI Commission, he cited the fact that New Hampshire is facing an epidemic of suicides among Veterans, and said, “What message are you sending to the communityout there and all the good work every one of us has done to protect people from killing themselves? Now we want to make it easy?”

He said that opening the door to such a practice would have grave consequences for veterans at risk for suicide, and that even studying such a bill would threaten efforts to help veterans.   He clearly states that euphemisms such as “aid in dying” don’t change the fact that such laws promote suicide and threaten efforts to protect people from killing themselves.

 

 

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